Anna’s Story and Patient Stories

Anna's HopeAnna was diagnosed with a brain tumour in February 2005 and following a 7-hour operation to remove it she underwent an intensive chemotherapy programme at Addenbrooke’s Hospital in Cambridge. For 15 months she spent every other week in hospital but sadly, like lots of children diagnosed with brain tumours, Anna lost her battle and passed away aged 3 years 8 months. She was an inspiration to everyone she met.

Anna never once complained that she had lost her hair or had to be fed through a tube in her nose for 15 months. She was courageous and even though she was frightened many times when she was in hospital, she never once refused to do what was asked of her. Despite the constant drain on her energy that comes with chemotherapy Anna was full of life, full of character and full of mischief. It is a tragedy that someone so young should die and my wife Carole, daughter Sara and I miss her so much.

Throughout Anna’s treatment Carole and I were privileged to meet a lot of brave children like Anna – too many in fact. We also discovered that whilst all children’s cancers are serious, many of them, like leukaemia, have high cure rates, but some cancers, like brain tumours, have very low survival rates. However those fortunate to survive the gruelling treatment programme of chemotherapy and radiotherapy can develop significant problems with learning ability and behaviour.

Annas HopeBefore we knew Anna was going to die Carole and I vowed that we would try our best in the future to help those children with brain tumours and try to improve their chances of survival and rehabilitation. Anna’s death has given us extra purpose to achieve this goal, albeit an enormous challenge, but if we all had the attitude of not doing things because it was too difficult we would not have seen the significant advancement in medicine over the last 25 years.

It will be a very long haul and we do not underestimate the challenges that lie ahead but we are inspired by Anna and children like her who battle every day and with your help we want to give future children a better chance of survival.

Annas HopePictured here, is Anna on her 2nd Birthday at her Fairytale Birthday Party, prior to her diagnosis. She loved everything about fairies and always had her fairy dress and wings on at every opportunity! The Charity Logo was designed from an image doodled by Anna’s sister, Sara, who explains: “the logo is shaped upon our memory of Anna at her happiest, smiling and dancing around with her fairy wand and making magic, Fairy Anna.”

The reasoning behind the charity colours are also inspired by Anna, whom despite her Mummy’s attempt to dress her from head to toe in pink, always preferred blue!

Finally the blue flowers found on Fairy Anna’s dress are forget-me-not flowers, to Anna Hopesymbolise that Anna will never be forgotten for the magic she brought to the lives of all those who knew her.

The Charity hopes to continue to bring a little hope and magic to other children and young people whose lives are affected by Brain Tumours.

Robert Hughes

 

Patient Stories 

Patrick’s Story

Maria’s Story