Tuesday 10th September marked the culmination of seven years’ fundraising and the exciting beginning of a pioneering new service that will contribute and make a positive difference to the lives of children with brain tumours. The new service, called ‘Brainbow’ will be the first in the country.
Brain tumours are the biggest cancer killer of children in the UK and for those who survive their lives can be severely limited.
Following the funding of the ‘Anna’s Hope Specialist Nurse’ at Addenbrooke’s we are delighted to continue our collaboration with the hospital by supporting the Brainbow service through the funding of the ‘Anna’s Hope Therapy team’ which includes a physiotherapist, speech and language therapist and an occupational therapist.
Anna’s Hope is also delighted to be partnering with Camille’s Appeal and Tom’s Trust; without them Brainbow would not be possible and we look forward to the service helping more children with brain tumours reach their full potential.
Brainbow will provide a comprehensive approach to rehabilitation, integrated alongside standard clinical care for children with brain tumours, something that was not possible before. A coordinated, specialist neuro-rehabilitation assessment will include physiotherapy, speech and language therapy, occupational therapy and clinical psychology.
Brainbow will support children under 16 already being treated for brain tumours at Addenbrooke’s and those who will be newly-diagnosed from October 2013.
Dr Amos Burke, consultant paediatric oncologist at Addenbrooke’s, said: “By launching Brainbow we will be able to provide a more standardised and holistic care package to children with brain tumours in the region. We are very grateful for the support from these three charities and we hope we can develop the service further in the future.”
It will also provide valuable evidence to support further work on the impact of neuro-rehabilitation on outcomes for children, an area of provision that is still in its infancy.
Brainbow will be based at Addenbrooke’s, which is the regional centre for the treatment of children with brain and spinal cancers.
We have still so much more to do and Anna’s Hope would like to thank all our volunteers and all those who have supported us so far. We also wish the Brainbow service every success in helping more children with brain tumours get much needed rehabilitation.
For more information about Brainbow please click here
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